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The Wheelchair Diaries - Ch18
🕑 Added 2025-09-21 21:31:04 +0000 UTCI wake up to my own ceiling and the soft panic of remembering where my body stops. It's quiet below my chest. Same as yesterday, same as the day before. And the relief that comes with that still feels a little illegal. I prop myself up with elbows and hands because nothing from my chest down wants to help. Pause. Breathe. My arms already ache and the day hasn't even started. The physio said it's because I overcompensate for the core I don't have anymore, but it feels more like I'm trying to drag two versions of myself everywhere: the fake one I lived in for months, and this new, official model. My legs are where sleep forgot them: one knee to the side, the other slightly folded like a doll someone put away too fast. I lift the right calf with both hands and it swings into place, heel falling against the sheet with that faint thud that's become mine. The left follows. They stay because I put them there.
I catheterized before lights out because the schedule says I should. My bladder doesn't care about the schedule. Transfers set it off. Coughs. Laughs. Thinking too hard. I used to choreograph accidents and call them freedom, now they happen without my consent and I call it Tuesday. I press my palm against the padding through the gown and get the answer I already knew. Wet. It annoys me and comforts me in equal measure. I peel off the covers and sit a little taller, the way they taught me, balancing with my hands because my trunk won't do it for free, belly rounding into a soft shelf when I lean.
Today is the day: first day back at work. First real, non-hospital date with Ben tonight. Mum is back in Spain texting prayers and dog photos, still clinging to the "bad infection, back to normal" story because it hurts less. Work believes it too. That's the odd joke of having faked it for months, no one can imagine me being "more" of what they think I already was. I wish there were a word for this specific loneliness, the kind where you are perfectly yourself and no one else is allowed to be happy about it. I picture telling my mother everything. I picture her face folding in a new way and decide to keep the sentence for myself. Maybe someday I'll say it out loud. Maybe not.
I strip in bed down to the diaper, thighs thin and loose under my palms and make myself look. This body is mine. Softer stomach. Legs that go anywhere I put them and nowhere else. I like it. I still feel guilty for liking it, and then I like it anyway.
The wheelchair is parked close, nose angled in so the seat touches the mattress. New chair: backrest a few inches higher than my waist, enough to hold me, more dump in the seat so my pelvis sits back and doesn't go sliding. I like the way it waits, brakes on, scissor locks tucked, wheels still. First, I lift the right calf with both hands, it swings, heel thumping the sheet with that padded sound I know. Left follows. Knees half-open, feet pointed down. The diaper has that swollen weight, a little humiliating, also weirdly reassuring because it means I am paralysed.
I plant my left hand flat on the mattress, fingers spread, and hook my right hand over the near wheel. I make a triangle out of myself: hand, hand, elbow. Chin down. Breathe. Push. My hips come up a few inches, a little deadlift with my arms, and my stomach folds a little, like a hinge. I move my hips a hand-width toward the chair and set down. Small exhale. Again: push, hover, scoot. The mattress squeaks. My shoulders burn a little.
Halfway across, I clamp my upper arm against my side to fake a core and not fall over. Another lift, another scoot. The chair's dump pulls me in now, the slope doing what my trunk won't. I land on the cushion. I'm forward of where I want to be, so I do the little hip shimmy the physios taught me: fists on the side guards, mini-lifts, bump back, bump back, until my pelvis finds that pocket the dump made for it. The rigid back catches the bottom of my ribs and I feel my shoulders drop a notch.
I pick up each shin with both hands and drop my heels onto the footplate. They flop out into an easy V. The diaper rustles when I lean down, and I smooth it under the waistband because I like it sitting flat. For a second I just sit there, naked except for the diaper, palms on the rims, and get a full look at what the morning is: softer belly, stronger forearms doing the job, legs thinner and unbothered, feet a bit puffy and still kind of cute in their uselessness. I try to picture who I was pretending to be all those months and come up blank. This is easier. This matches.
I tap the brakes to hear the click, then release them. My hands remember the new stroke, grab a little farther back, let them fall off the front, save the shoulders and I roll the few feet to the bathroom. I catch my paralysis in the hall mirror, my face trying not to smile at the fact of it. I look like myself, which is the strangest, best part. Then I turn into the bathroom to finish being a person, already thinking about the day. Work, people's faces and the tiny, constant thrill that my body and my story finally match. The grab bars are exactly where my hands want them. I transfer to the toilet, tear the diaper free and drop it in the bag I keep looped on the rail. Even with catheters on a schedule, I still leak, so the diaper is less a backup and more a precaution. .
I line the catheterisation kit up. Gloves tug tight over my wrists, with a snap that still makes me feel like I'm impersonating a nurse. I spread my knees with my hands, then wedge the little mirror where I can see what my body won't report. The cold wipe shocks my fingers more than anything else. Below my chest there's nothing.
The packet opens with that clean plastic hiss. The tubing slips into my palm, ridiculous that something this flimsy can do a job my body won't. I breathe and line up by sight, not feeling. I hold steady because this part is about patience. The first drops shows up in the line like a shy admission. Then it's a thin amber ribbon, steadying into a pour. I watch the bag bloom at the bottom corner, the way condensation freckles the plastic and slides down, the way the tubing warms in my hand as if my fingers are learning a new kind of feedback.
I keep one hand on the rail so I don't fall. When the stream thins to a trickle, I wait the extra thirty seconds rehab taught me to. The last reluctant drops, the small clear pause. I pinch, tilt the catheter up to let gravity finish, then watch the bag settle. Gloves off, snap-snap. Wipe, fold, bin. The mirror goes back on its hook. I look at my lap for a second, at the still legs I just managed around like furniture.
Bowel program next. I hook my elbow through the grab bar because if I don't, I fall. Manual stimulation when it's time, small circles, patient hand, shoulders doing the stabilizing my stomach can't. I watch my knuckles go pale and then pink again. Clean up. Barrier cream where it matters. Mirror check. Clear. Boring is good. I make myself like boring.
I transfer to the shower bench and it squeaks when it gets wet. The water hits my shoulders and slides straight off the map at my sternum, like every morning since I got back from rehab. I grip the bar so I don't tip sideways, because trunk control is just gone, and that's fine. My stomach folds when I lean. My legs hang forward, useless but perfect. I love them like this: quiet.
I keep thinking about the office. Will they notice? The way my transfer is not a performance anymore. The way I don't fake core strength by clutching the desk or pretending to shift my weight like before. Maybe they'll just think the "infection" left me weaker. Or maybe they won't notice at all, because no one ever really looked in the first place.
It feels like the first day of the rest of my life. Stupid phrase, but it's true. Rehab is behind me, mum's back in Spain, and I don't have to keep rehearsing fake routines to look the part. This is the part. I don't have to double-think every move: "Would a paraplegic sit like this?" "Should I look more floppy?" I just am.
I tilt my head to rinse shampoo, water dripping down a body I can't feel, and I grin because it's mine. Today I roll into work and no one knows the difference, except me. Tonight, dinner with Ben: no syringes, no secrets. Just me in this body, not pretending. That's the part that makes my chest feel tight, like excitement and terror are the same muscle. But either way, this is real. Finally.
Towel over my shoulders and back to the wheelchair. Transfer to bed because my bed is easier for dressing. Fresh diaper first. I lift my hips with fists pressed into the mattress, slide the padding underneath, smooth the wings flat so they don't rub, press the tapes down until they give that little sticky click that says secure. The snugness is weirdly comforting, like being held.
I bunch the leg to the knee, feed my soft, unhelpful foot through my jeans with both hands, then the other. I hook an elbow on the headboard so I don't roll and pull the waistband over my hips in two determined yanks. White tank top. Bra clipped in front and twisted around, because that's the way now. Blue jumper over it. I sit myself up with hands behind me, chase my balance, and wrestle the denim hems down to my ankles so the fabric doesn't bunch in my shoes.
Shoes on my lap. Adidas, a little scuffed. Right foot onto left knee with both hands, lace, tuck. Swap. The weight is good, it makes my feet behave on the footplate. I pause and look: thighs in trousers and a line at the chest where the world goes quiet. I don't need to pretend. I stand that thought up in my head and it doesn't fall over.
I get back to the chair. Feet onto the plate. I do a quick scan of the bathroom, mirror back on its hook, wipes restocked, catheters stacked, bin tied. It calm me. Then I let my brain ruin it briefly by thinking of my mom, sitting in the rehab corner, knitting a thing she'll never finish, crying in bathrooms so I wouldn't have to watch. I look at my hands, at the small scars and new calluses from the rims, and then at my legs folded quiet under the jeans, and the room gets too loud in my head.
I wanted this. God, I wanted it. I let myself imagine the silence for years, the way a pub chatter hushes when a song you love comes on, the slow flattening of noise until only the good parts remain. I rehearsed shutting things off like an amateur electrician: nothing violent, just a little click, and the world would be quieter. Now the click is loud and bright and permanent, and I'm the one who flipped it. Part of me swells with a fierce relief so alive it almost shocks me. But right after that relief there's this immediate, hot guilt that tastes like metal.
Who am I to be glad? I think of the mother I love. I think of the way her face folded when they told her the level of my injury. I think of her saying, "You're so brave," and the way the words didn't land kindly. How do you give someone that and expect them not to break?
Guilt isn't a single thing. It's a poker hand. I get angry at myself for wanting it. I get angry at the system for making desire into shame. I get furious at the part of me that imagined a quieter world as a kind of moral act, like I was carving something holy out of noise. I also get tender with myself because I remember how loud my head was, how every small thing in my body felt like a microphone. There is a compassion for the earlier me who searched YouTube at 3 a.m. because she was trying to find a problem she could solve. That person was lonely and brilliant and reckless.
Sometimes I run through scenarios to find the one that undoes the knot. If I could write a note and tuck it in my mother's purse that said," This is not your fault, nor mine. I am not less. I am not wrong," would she read it and breathe? Would she hate me for not having to hate the life I had? Would she be angry at me for making choice out of chaos? The answers change on a mood-by-mood basis and none of them comfort.
I think about the people who would want to trade. I also think about the people who would want to blame: for the bag I kept, for the choices I made, for the desertion of "normal." How many of them can I withstand? None of them matter more than my mother's voice when she called me the night before she flew back, timid and raw, asking if I needed anything else. I didn't tell her that I loved the quiet and I didn't want to trade. I told her about socks, because socks don't implode the world. Maybe that was cowardice. Maybe it was kindness.
I check the clock. The minutes are exact and merciless. I put the work bag on my lap. Catheters, wipes, lube. Spare diaper and spare trousers rolled tight like a little secret. Hand sanitizer, lip balm, the small mirror, wallet, keys, headphones. Tiny perfume because I'm over smelling like saline and paper towels. I pack it the way you pack a toddler: everything within reach, everything doubled.
Phone lights. A text from Liv: "You coming? HR's practicing their Concern Face." I grin. "On my way. If I cry, it's spreadsheets." A message from Mum that I don't open right away because I need a pocket of peace before the guilt flood. A reservation ping for tonight that makes my stomach flip, nerves and want in equal measure. No syringes, no curtains, just food and a person who knows the worst and keeps showing up. I want that so badly it makes me superstitious.
I wheel to the mirror for one last look because even now I don't fully trust that she'll be there, the woman I built in my head for years. She is. Shoulders that belong to someone who lifts herself. A rounder belly. Legs that let me place them and then mind their business. I feel the old longing and the new guilt and the brand-new excitement stack up in my chest like badly parked cars. Anxiety slides in beside them and honks once. Fine. Let's go.
Comments
M E
If this is the end, it is beautiful on its own, but I imagine some kind of resolution with Ben is going to happen. We'll see.
