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In sickness and health - Ch1
🕑 Added 2025-09-03 19:21:40 +0000 UTCThere's this thing they don't tell you about coming home after months in rehab: it's supposed to feel like victory. Cue the inspirational soundtrack, the slow-motion montage of you rolling triumphantly through the door while people clap. Except the only soundtrack right now is the turn signal clicking like a metronome for my anxiety, and the only slow motion is me blinking at the same highway trees I've seen for forty minutes straight.
I'm in the passenger seat of our very normal, very non-accessible car. My head rests against the seat, free, because that's all what I've got now: a head. A neck. That's the border of my universe. From the shoulders down, it's a dead zone. No movement, no feeling. Just... absence. C4 Quadriplegic. Complete. It's like living in a house where all the lights are off and you can't find the switch.
My arms lie across my lap like two dead fish, pale and weirdly not-mine. Every time Will glances over at me, I tilt my head, like see? totally casual, even though nothing about me is casual anymore.
The seatbelt isn't enough to hold me up. An improvised chest strap digs across my ribs, a thick nylon reminder that without it, I'd fold forward like a dying flower.
Will is talking in that bright, hyped voice people use when they're trying to pull you out of quicksand with compliments. "You're gonna love what we did to the house," he says. "Your dad and I, we really worked hard to make it accessible. You're gonna see."
I want to say, Oh my God, you didn't have to do all that. But of course you did, because nothing is easy now. Doorways had to be widened, thresholds flattened, counters lowered like we're living in some dystopian kid's playhouse. And all of it costs money we don't have because rehab basically vacuumed out our savings. It's like a wedding, but instead of champagne and cake you get catheters and an existential crisis.
The rehab thing... yeah, that was a joke. A really expensive, aggressively cheerful joke. They told me, "You never know what might come back." Like my nerve endings were just on vacation and needed a postcard. Every day, they'd strap electrodes to me, have some twenty-two-year-old in scrubs chirp, Let's try to move those fingers today! And I'd stare at my hand like, Move. Move. MOVE, until I wanted to scream. Spoiler: nothing moved. Not a twitch. After three months of that, you stop hoping. You start realizing the only thing that's going to change is how good you get at pretending this is fine.
Will keeps talking, filling the air like he's afraid of silence because silence might mean I'm thinking. And if I'm thinking, I might be thinking about the before. About the pool, the dive, the sound. About how the last time we drove home from somewhere, I could scratch my own face if it itched. I could turn the radio up myself.
The car slows as we pull into our street. Our house looks the same. Except it's not the same. It's... theirs now. Theirs, as in the house of the couple we used to be. The couple who could walk through the front door without thinking about ramps or which bathroom could fit a wheelchair.
Will parks and jumps out, all energy and nerves. He pops the trunk like this is some normal grocery run, and I hear the clatter of metal as he pulls out the wheelchair. Not the good one, the electric one I can drive with my mouth joystick like a low-budget cyborg. That one doesn't fit in our car. That one needs a van, and a van costs more than my first year of college. So today it's the manual chair, which is hilarious because I can't move it an inch on my own. My arms are dead weight, my hands can't even grip the rims. But sure, let's keep calling it "manual" like I'm going to be zipping around the neighborhood later.
Will sets it up on the pavement with this efficiency he didn't have six months ago. He's learned all the straps and angles, the safest way to fold and unfold like he's prepping some very sad piece of IKEA furniture. Then he comes around to my side, opens the door, and says, all cheerful, "Ready?"
I want to say, No, can we just keep driving forever? But instead I nod, because nodding is still something I can do.
The transfer is a whole thing. He loops his arms under mine, his breath close and uneven. He tries to make it feel normal, like this is just some romantic lift like in Dirty Dancing, except I'm limp and awkward. My head tips forward for a second, because yes, I can move it, but sudden movements are hard to control.
When he lowers me into the chair, my arms flop uselessly to the sides. I hate that word "flop" but that's what it is. Like someone dropped a puppet and forgot the strings. Will buckles the strap across my chest and checks it twice, his hands quick and practiced. He doesn't look me in the eye when he does it. Neither of us do.
"Comfy?" he says, smiling like this is an airline and he's about to offer me peanuts.
"Totally," I lie. How would I know? I can't feel anything from shoulders down.
He grabs the handles and starts pushing me up the driveway. The wheels squeak. The air smells like cut grass and something sweet from the neighbors' yard. It should feel like homecoming, but it feels like trespassing. Like we're visiting a life that doesn't belong to me anymore.
The front door comes into view, wide and flat now, a little metal ramp gleaming in the sun. Will keeps talking, words spilling out of him like sand from a broken bag: "We got rid of that stupid rug you always tripped on... put in new lights in the bathroom... your dad even figured out how to"
I stop listening. I'm too busy looking at the door and wondering if crossing it will make it real. If this is the part where the before finally dies and the after takes over.
Will leans down, squeezes the handles like he's bracing for something, and says softly, almost to himself, "Welcome home."
And I smile, because that's what you do when you don't know how to scream.
"Surprise!"
The room explodes in clapping and voices. I blink because what else can I do? People everywhere, faces I know but don't recognize in this new, hyper-saturated context. A banner flaps above the doorway: WELCOME HOME LOUISE! in pink cursive like I just came back from spring break and not spinal cord purgatory.
"Oh my god, there she is!" Aunt Trish barrels toward me, her bangles jingling like sleigh bells. She leans down, hands on her knees, and gives me the up-and-down like I'm a car she might lease. "Honey, you look so good!"
"Thanks," I say. My voice sounds thin. "Turns out paralysis is an excellent skincare regimen."
She laughs like I'm joking. Everyone laughs like I'm joking. Perfect.
Then Mom's there, perfume cloud first, and she hugs me. Or hugs at me. My arms just lay there like dead vines. She whispers, "You're home, baby," and pulls back with a grin so wide it looks painful.
And then, questions. Flying at me like Nerf darts.
"Did you miss your own bed?"
"How was Italy before, you know...?"
"Did you regain any movement yet?"
That one hangs in the air, heavy. Cousin Jenny, tilting her head like a curious parakeet.
I plaster on a smile. "Nope. Still factory settings from the shoulders down."
Jenny blinks. "But... do you, um, feel anything? Like tingling?"
"Nothing. Not even a buzz." I tip my head toward my lap. "If you set me on fire, please at least warn me so I can make peace with God."
A beat of nervous laughter. Someone coughs. Someone else changes the subject so hard it practically screeches.
"Oh! Louise, your hair looks amazing!" Aunt Trish again, voice pitched high like we're in a shampoo commercial.
And then chaos in child form: Ella. Seven, gap-toothed, clutching a Capri Sun like it's a grenade. She launches herself into my lap before I can blink. "Aunt Lou! I missed you!"
"Hey, bug," I say. I can't feel her weight on my lap. My thighs don't report back. It's like holding a hologram.
Then, squish. I see the Capri Sun collapse in her hands, the juice spilling across my pants. Will stiffens, grabs a towel, and Ella screams, "Oh no! Your pants!"
"It's fine," I say brightly, forcing the words to match the situation. "Adds character."
Will kneels, blotting at my lap like it's a crime scene. His face is tense, anxious, but trying to smile. And I just watch, thinking: I can't feel this. I can't feel anything.
"You really don't have to" I start.
"Lou," he says softly, not looking up. "Just let me."
And I do. Because what's the alternative? Telekinesis?
More questions come, bouncing from one relative to another.
"So... the rehab place... did they, like, work on walking?"
"No, Janet, it's not" someone else starts, but I cut in.
"They worked on teaching me how to not drown in the shower and how to control the computer with my eye gaze," I say. "Walking wasn't really on the menu."
Janet's face crumples like bad origami. "Oh. But maybe someday"
"Sure," I interrupt, voice sugar-sweet. "And maybe I'll win The Voice. Anything's possible."
Awkward silence. Someone puts on music. Dancing Queen, because the universe has a dark sense of humor.
I scan the room. The furniture's all shifted, like someone pressed reset on a video game. Chairs pushed aside to make room for me. This isn't my house. It's a set. A glossy, overexposed photo of my old life with accessibility edits layered on top.
Voices blur together. Someone says something about the weather. Someone else offers me a drink. Ha. Hilarious.
I smile so hard my cheeks hurt. I laugh when I'm supposed to. I nod like I'm listening. And inside, there's this low hum, like static, like I might burst into tears if someone so much as breathes wrong.
Then Will leans down, squeezes the chair handles, and whispers, "You wanna go to the bedroom? Just for a break?"
God, yes.
But out loud I say, "Sure. Just five more minutes. I'm the guest of honor, right?"
And I grin, because that's what you do when you're the saddest person in the room and nobody wants to admit it.
Someone swoops toward me with a plate of cake, chocolate with this ridiculous mound of frosting, like it's trying to compensate for all the awkwardness in the room.
"Oh, you have to try some!" my cousin chirps, holding it out like it's a peace offering or a secret handshake.
I tilt my head politely. "Thanks, but... not hungry."
Her smile falters. I'm not ready for that. I'm not ready for anyone to watch me be fed or maneuver this chair. So I shake my head, just enough to be polite. The cake disappears back into someone else's hands, and I breathe a small sigh of relief I don't let anyone see.
"Okay, well... what about work?" Aunt Trish asks, voice cheerful but slightly nervous, like she's stepping on eggshells. "When do you think you'll go back to teaching?"
I blink at her, imagining myself in front of thirty little faces, trying to explain color theory while my arms are useless. "I... I'm still thinking," I say carefully. Truth is, the thought terrifies me. It's not just the logistics or accessibility, it's the idea that I can't respond in the ways my job demands, the reflexes I once had. "Still thinking."
"Oh, honey," she says, brushing my answer aside with a wave. "The kids will love you no matter what." She's smiling, but she doesn't see the calculation behind my eyes, the list of things I can't do anymore, the choreography of my own body I have to relearn just to exist.
"And your care team?" my dad asks from behind a balloon arch. "The nurses, therapists... are they helping enough?"
I tilt my head toward Will. "Yeah. Tomorrow I'll be doing some interviews with a couple more specialists, finalizing everything. Then Will can go back to work."
He gives me a quick, relieved glance and squeezes the wheelchair handles lightly. "Yeah. Feels good to know things are... moving," he says.
I manage a smile, one of the practiced ones I've been using all day. "Moving," I repeat. The irony is sharp. My body doesn't move, but the world is barreling forward without me, full of schedules, care plans, and people's expectations.
Someone offers me a napkin. I watch them pause, unsure if I can grab it myself. I can't. Will intercepts, handing it to me, careful and gentle. I nod at him, a silent thank-you, and tuck it into my lap.
Voices blend together. People laugh, talk over one another, comment on the weather, the decorations, the food. Everything is alive and moving. And I'm sitting here, anchored in the middle of it, body useless, feeling invisible and hyper-visible at the same time.
